That’s what my nurse asked me at discharge! 😂 Glad to report I am not noticing anything like that. I’m home now. I’m feeling good – just tired. It will be good to rest this weekend. No final results or reports to share. Now it’s a waiting game. In 3-6 months I might notice more…

youtube.com/watch

Another easy day of laying in the tube and zapping my unwanted guest. It feels like nothing is happening, but they assure me that lots is happening! 😂 More carbs… and a puzzle to keep us busy We did visit a super old tavern for lunch. The weather has been cold and snowy. Then we…

3 more to go! Here is a picture of my tracking nose sticker. If I move too much, the blue line goes over the red line and the machine stops. Over the weekend we explored the area and learned lots about Thomas Jefferson. Here are some pics form the campus (which he designed) and from…

The first treatment was super easy and quick! I’m only getting radiation for 8 minutes at a time. That number varies by person and by tumor shape and size. It was weird – totally quiet. You don’t hear, see or feel anything. They do let you listen to music, which was a nice distraction. They…

Hello from Charlottesville, VA! It has been a busy two days – lots of appointments and imaging. Yesterday I had a 2 CT scans, an MRI and the mask fitting. Erin joined me for the first few days and now Kyl is here. Erin and I had lots of fun, ate great food and did…

All jokes aside, I am here – at Mayo Clinic in Rochester, MN and now I’m more confused than ever. I just met with the neurosurgeon who hadn’t seen anything about me yet and he said he’s not even convinced that there is regrowth. WHAT? It was so bizarre and not at all what I…

Hello friends. I haven’t posted in a while, but my (and Ella’s – now “Ace”) journey is not over, unfortunately. I had an MRI in July and it is showing some regrowth. It is small – like the size of a pea, but I need to address it. You can see it in these scans.…

We had a great pick up on Sunday. The girls were in good spirits and were all supportive of each other. We will really miss this special place. The staff and therapists all care so much and it’s such a shame they are closing. Our time here has been invaluable. Since dropping Kyl off at…